Myelofibrosis–A Personal Journey

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Cancer Relapse

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Mighty R

Yes, R’s myelofibrosis is back just 7 months after his bone marrow stem cell transplant. We are waiting on final results from his most recent bone marrow biopsy but what we know so far is—R’s cancer cells have resurfaced in a big way.

The team at Fred Hutch plans to give him infusions of a chemo med called Azacitidine. Depending on his body’s response they might give him a boost of donor cells, too.

No one will talk to us about prognosis. And perhaps that’s best. Focus on the things we can impact and don’t waste too much precious energy on things we cannot.

9 responses to “Cancer Relapse”

  1. JamesOfEdmonds Avatar
    JamesOfEdmonds

    Trying to use this $@#%+¥!!! site, again.

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    1. JamesOfEdmonds Avatar
      JamesOfEdmonds

      What a surprise! Maybe I can get it to work next time…

      Technophobic Neanderthal

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    2. dianajnoble Avatar

      You seem to be using it just fine since I can see this post.

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  2. JamesOfEdmonds Avatar
    JamesOfEdmonds

    Now that I have sorted out the technical issue, let me end with something less prosaic. Here is a reflection on suffering from a week or ago:

    Severe suffering forces us powerfully and painfully into the present moment, which is the context in which we encounter God. Such suffering imposes a decision of faith: do we trust that God is still with us and for us? To commit to Him at such times is to commit our entire being to Him because severe suffering comprehends our entire being.

    May all of our sufferings bring fruit in this life and the next.

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  3. Jeri Wilkes Avatar
    Jeri Wilkes

    Oh Diana and R…..so sorry to read of this. May the God of Peace surround you both, and all of your family right now. Praying for R and for you and the entire family. Ultimately God prevails. It may not be what WE want, but ultimately He prevails. You are so right to focus on the things you can have impact on. xoxoxo

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  4. Victoria Fredman Avatar
    Victoria Fredman

    My biggest, hugest, positive mojo energy, love and prayers are laser focused

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  5. Beverly Brooks Avatar

    Diana & Russ we are thinking of you both and your family. Prayers are with all of you.

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  6. alwaysselfless9077e0c331 Avatar
    alwaysselfless9077e0c331

    Dear Russ and Diana, thank you for sending me this message. It is hard to beleave, that you two are facing such a backside after everything seemed to go better. I am very sorry and only hope the doctors find a way to stop this new invation of cancer cells. I know that your whole family will do everything to support Russel and he will need this support. I am farcaway but I embrace you, think of you and pray that Russ get’s better too. Please keep me informed. You have all my love, Dagmar

    Von meinem iPhone gesendet

    >

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  7. Anne Frantilla Avatar
    Anne Frantilla

    Thinking of you both and sending strength and positive energy.

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