Little update here as we are now heavily into preparation mode for R’s transplant. Tomorrow, we meet with the finance team and a nurse at Fred Hutch. The following day we meet the transplant team–the doctor and others. After that, it’s constant appointments to check R’s health: ultrasounds, MRIs, heart tests, a dental oncology test and more. He’s admitted on November 8th for chemo and November 14th, he gets his transplant and a chance at a long life. Without it, data shows he’d have 1-2 years. No way!!!!
We recently went on a trip to Georgia–one last hurrah before the crazy begins. While we had some good moments, we also got the stomach flu; me first, R second. It was BAD, folks. Pretty much ruined the trip. Perhaps getting us used to what’s coming? Yikes.
We got home and visited with family last night. Good thing we did. The plan was to have an early Thanksgiving on November 1st with extended family and friends, but we’ve been reading that it’s wisest to isolate from others at least 2 weeks prior to chemo. R cannot get sick! His donor is already undergoing medical workups somewhere in Europe. It’s not an easy process for him/her. The last thing we want to do is to ruin R’s chance of having the transplant on November 14 as planned because he comes into contact with someone who has a virus (and doesn’t know it). So, no early Thanksgiving party. But, it’s okay. The whole transplant and the hell R is about to go through is so he can have LOTS MORE FAMILY time in the future.
And, so it begins. I’ll keep this updated as things move along. Right now we’re trying to wrap up all kinds of stuff at the house and thinking about what to pack. And holding on to each other as often as possible.
Your loving thoughts and well-wishes mean so much.
Myelofibrosis--A Personal Journey 
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