Myelofibrosis–A Personal Journey

Myelofibrosis–A Personal Journey

Sharing Our Story, Staying Connected

Category: Uncategorized

  • The Cost

    The Cost

    Here’s some interesting and important information about MONEY. I spoke to a financial coordinator on the Fred Hutchinson Cancer Center team. Without insurance, the bone marrow stem cell transplant would cost approximately:

  • The Transplant Doc

    The Transplant Doc

    For those who like a summary at the top of a long narrative: the appointment on 7-27-23 at Fred Hutchinson Cancer Center (Hutch) did not go the way we imagined, meaning, we don’t have a clear plan for addressing R’s cancer.

  • In the Beginning

    In the Beginning

    My intent for this blog is to share information about my husband’s battle with primary myelofibrosis. It’s a rare bone marrow cancer, and most of what I’ve read online is technical/research information, much of which is hard to interpret for the non-medical professional.