Category: Uncategorized
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Damn Spleen!
R and I went to see a nurse practitioner at Fred Hutchinson Cancer Center in Seattle yesterday to discuss his newest symptoms: major leg and foot cramps, mostly at night (it’s horrible to watch him go through these) and rapid weight gain.
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A Match
A few things have happened since the last time I wrote—one is a medication change, and the other is news on a stem cell donor.
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Hope Springs Eternal
R saw Dr. Anna Halpern at Fred Hutchinson Cancer Center (Hutch) this week. She specializes in Myeloproliferative Neoplasms (MPNs). “MPN” is the umbrella term for a specific group of blood cancers. There are seven types of MPNs. The primary three are Polycythemia Vera, Essential Thrombocythemia and Myelofibrosis – all of…
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The Cost
Here’s some interesting and important information about MONEY. I spoke to a financial coordinator on the Fred Hutchinson Cancer Center team. Without insurance, the bone marrow stem cell transplant would cost approximately:
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The Transplant Doc
For those who like a summary at the top of a long narrative: the appointment on 7-27-23 at Fred Hutchinson Cancer Center (Hutch) did not go the way we imagined, meaning, we don’t have a clear plan for addressing R’s cancer.
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In the Beginning
My intent for this blog is to share information about my husband’s battle with primary myelofibrosis. It’s a rare bone marrow cancer, and most of what I’ve read online is technical/research information, much of which is hard to interpret for the non-medical professional.
Myelofibrosis--A Personal Journey 