Category: Uncategorized
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It Starts, 1st Day of Chemo 12-6-25
Here we go! We arrived at The University of Washington Medical Center at 8 am this morning. After getting settled in the room, nurse Erin took R’s vitals and some blood for testing. The chemo drip (called Fludarabine) started at 12:30 pm. He’ll get the same chemo tomorrow and the…
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And We’re ON Again!
For MF patients or their caregivers; I am not a doctor. Please do your own research if this information does not line up with your understanding. The new dates are booked–December 6th R gets admitted to the University of Washington Medical Center for chemo and December 12th he’ll get the…
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It’s Been a Roller Coaster Lately
Lordy, have we been through one hell of a time lately. R was in the hospital for 11 days after he collapsed on November 4th (with zero warning). After trying for days to figure out what was causing all his symptoms such as fever, pain, worsening blood counts, night sweats,…
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Transplant Called Off for Now
We went to see the Director of the Stem Cell Transplant Division at the cancer center yesterday for a “hospital follow-up visit.” We weren’t sure what that meant exactly, but figured it was routine, since R was recently released from the hospital after a scary incident that occurred on November…
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It Was the Vice Principal and the Spleen in the Bedroom
Remember the game, Clue? “It was Professor Plum with the wrench in the kitchen.” I loved that game as a kid. Maybe that’s why I watch shows like Dateline and 48 Hours way too much. Anyway, you will recall that R woke up early in the morning on November 4th,…
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Process of Elimination
R is still at the University of Washington Medical Center. He’ll be here at least through Monday. His transplant has been postponed, tentatively, by 2 weeks. After all kinds of tests and theories, it’s still not completely clear what’s caused all of his recent medical symptoms/problems. He’s had erratic body…
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Unexpected Start
R’s chemo had been scheduled to start on November 8 followed by the transplant on November 14. He told the docs he’d do the first 3 days of chemo (when they administer the milder of 2 chemo medications) as an outpatient, meaning he’d be at home until the 11th. Well,…
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Info Overload
I wrote something here only 2 days ago, but we’ve learned a lot since the preparatory appointments & medical assessments began. We’re holding up alright. Nervous and scared and resigned. Gotta do it. Your encouraging messages of love and prayer continue to boost our spirits. Pic above of R and…
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And So It Begins
Little update here as we are now heavily into preparation mode for R’s transplant. Tomorrow, we meet with the finance team and a nurse at Fred Hutch. The following day we meet the transplant team–the doctor and others. After that, it’s constant appointments to check R’s health: ultrasounds, MRIs, heart…
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Minor Updates
Not a BIG update to my last post, but we’ve recently learned a few things: Now that we’re in this critical phase, I’m unsure how frequently to post updates going forward. Perhaps weekly? I’m also unsure whether I should continue posting links on Facebook for friends and family or simply…
Myelofibrosis--A Personal Journey 