Category: Uncategorized
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A Feeding Tube Plus…
My last post on December 12th included a snippet of our relationship history. Many of you commented about and seemed to enjoy it. Family and friends know I’ve published 3 books, 2 young adult historical fictions and 1 dark comedy/cozy mystery. But…motivation and ideas have dried up as of late.…
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Hip Hip Hooray! It’s New Stem Cell Day!
Today is R’s “re-birthday.” The first donor cells went into his body at 5:20 pm. Halla-freakin-lujah. They arrived at SeaTac around noon, all the way from Germany. It’s interesting how many stem cell donors are from Germany. Apparently, it’s part of the cultural norm to sign up. Armed services members…
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Another Scary Episode, This Time with Jakafi Withdrawal Syndrome
This post might be of most interest to those taking Jakafi and preparing for transplant, although what happened to my husband yesterday is uncommon. Things seemed to be going smoothly R’s 1st day and a half in the hospital. His plan includes 3 days of “Fludarabine” chemo, the milder chemo…
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It Starts, 1st Day of Chemo 12-6-25
Here we go! We arrived at The University of Washington Medical Center at 8 am this morning. After getting settled in the room, nurse Erin took R’s vitals and some blood for testing. The chemo drip (called Fludarabine) started at 12:30 pm. He’ll get the same chemo tomorrow and the…
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And We’re ON Again!
For MF patients or their caregivers; I am not a doctor. Please do your own research if this information does not line up with your understanding. The new dates are booked–December 6th R gets admitted to the University of Washington Medical Center for chemo and December 12th he’ll get the…
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It’s Been a Roller Coaster Lately
Lordy, have we been through one hell of a time lately. R was in the hospital for 11 days after he collapsed on November 4th (with zero warning). After trying for days to figure out what was causing all his symptoms such as fever, pain, worsening blood counts, night sweats,…
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Transplant Called Off for Now
We went to see the Director of the Stem Cell Transplant Division at the cancer center yesterday for a “hospital follow-up visit.” We weren’t sure what that meant exactly, but figured it was routine, since R was recently released from the hospital after a scary incident that occurred on November…
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It Was the Vice Principal and the Spleen in the Bedroom
Remember the game, Clue? “It was Professor Plum with the wrench in the kitchen.” I loved that game as a kid. Maybe that’s why I watch shows like Dateline and 48 Hours way too much. Anyway, you will recall that R woke up early in the morning on November 4th,…
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Process of Elimination
R is still at the University of Washington Medical Center. He’ll be here at least through Monday. His transplant has been postponed, tentatively, by 2 weeks. After all kinds of tests and theories, it’s still not completely clear what’s caused all of his recent medical symptoms/problems. He’s had erratic body…
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Unexpected Start
R’s chemo had been scheduled to start on November 8 followed by the transplant on November 14. He told the docs he’d do the first 3 days of chemo (when they administer the milder of 2 chemo medications) as an outpatient, meaning he’d be at home until the 11th. Well,…
Myelofibrosis--A Personal Journey 